|
Organizations and
Websites
Resources are for
information purposes only.
Additional non-perinatal bereavement links can be found in the store. |
|
A
Life Recorded Online Tributes and Memorials - A Life Recorded is an
Online Tributes and Memorials website where you can place pictures,
music and text about your deceased loved ones and beloved companion
animals, creating a personalised Memorial to share with friends and
family around the world.
A Place
to Remember
is committed to publishing and providing uplifting support materials and
resources for those who have been touched by a crisis in pregnancy or
the death of a baby.
AMEND, Inc. is a lay group
of volunteers which offers a listening ear, a strong shoulder, and a
compassionate heart to aid mothers and fathers as they experience normal
grief following a neonatal death or miscarriage.
Angel Baby Baskets
offers unique sympathy gifts for miscarriage, stillbirth, and infant
loss survivors; memorial remembrance gifts
Babies with God is a worldwide prayer ministry for those who
have lost a baby from conception to 3 years old.
Baby Loss
and Healing is dedicated to bringing support and information to
families going through the loss of a baby, whether through chemical
pregnancy, miscarriage, stillbirth or infant death in a positive and
healing atmosphere. Includes a forum area, live chat room and regularly
updated information on statistics, procedures, medications and facts
about baby loss.
Beauty in the Breakdown chronicles a mom’s grief and coping through art. Bereaved Parents of the
USA (BP/USA) is a national non-profit self-help group that
offers support, understanding, compassion and hope to bereaved parents,
grandparents and siblings struggling to rebuild their lives after the
death of their children, grandchildren or siblings.
Bereavement Services’
(formerly RTS – Resolve Through Sharing) mission is to provide and
promote dignified, respectful, and compassionate bereavement care for
patients and families suffering loss throughout the continuum of life,
to develop and distribute bereavement training and support resources for
healthcare professionals and their patients, and for organizations and
communities concerned for the health of their members, to establish and
maintain professional expertise and international leadership in
bereavement care education and support service.
At
Celebration-of, ccelebrate
the birth of your baby and share the moments of joy with family and
friends. An everlasting website helps you record the first days and
chart every milestone and memory as your child grows.
The Centering Corporation is a non-profit organization
dedicated to providing education and resources for the bereaved.
CLIMB (Center for Loss in Multiple Birth) serves
families and others throughout the United
States, Canada and beyond. They provide parent-to-parent support for
all who have experienced the death of one or more twins or higher
multiple birth children at any time from conception through birth,
infancy and early childhood.
The Compassionate Friends
assists families toward the positive resolution of grief following the
death of a child of any age and to provide information to help others be
supportive.
First Candle/SIDS Alliance is a nonprofit health
organization uniting parents, caregivers and researchers nationwide with
government, business and community service groups to advance infant
health and survival.
Forever Our Angels
promoting information and support for pregnancy loss.
Free Condolence Cards at 123Greetings.com, the largest free ecards website in the world, with over 20,000 ecards celebrating more than 3,000 everyday, special occasions & events.
Good Grief Resources
connects the bereaved and their caregivers with as many bereavement
support resources as possible in one, efficient and easy-to-use website
directory.
Grief and Loss Help
offers compassionate support and
resources for all losses from an experienced counselor. Change negative
thinking with Marcia's free, inspiring music
and newsletter.
Grief
Healing
- Information, comfort and support for anyone coping with
or anticipating the loss of a loved one, whether that is a person or a
cherished animal companion. Includes useful articles on various aspects
of loss, recommended book lists, inspirational writings and poetry, and
categorized links to dozens of other helpful resources. Hosted by Marty
Tousley, APRN, BC, FT, certified hospice bereavement counselor.
Grief Healing Discussion Groups
- Safe, anonymous, online place where the bereaved can share their
stories of loss and ask questions to learn more about the normal
grieving process. Includes a forum for
Loss of an Infant, Child or Grandchild.
Sponsored by Hospice of the Valley and moderated by certified hospice
bereavement counselors.
Grief Loss
& Recovery
Grief poems, articles and memoirs. Caring, supportive grief support
discussion group.
Group B Strep
International Our mission is to promote international
awareness and prevention of Group B Strep disease in babies before birth
through infancy.
Guardian
Angel Perinatal Support (GAPS). Long Island chapter of
National SHARE.
Healing Hearts,
BabyLossComfort provides
Information and resources on
miscarriage, pregnancy loss, stillbirth, sudden infant death syndrome
and infertility.
HeartSorrow for support, acknowledgement and healing for the
grieving heart.
The mission of
the HELLP Syndrome Society
is
to raise awareness about HELLP Syndrome,
raise money for and conduct research, provide support to affected
families.
Holding On To Faith The personal journey of a husband and
wife who experience three early pregnancy loss, two by miscarriage and
one by ectopic pregnancy. It is a story who offers hope through faith
for a future conception.
Hygeia
Foundation, Inc. & Institute for Perinatal Loss and Bereavement is an
organization whose mission is to comfort those who grieve the loss of a
pregnancy or newborn child, to address disparities in access to
healthcare services for medically and economically underserved families
with respect, dignity and advocacy and to provide advocacy and resources
for maternal and child health.
I HATE THIS
(a play without the baby) the award-winning solo performance by David
Hansen. An honest, horrible and even humorous trip through one father's
experience with stillbirth.
The
International Stillbirth
Alliance (ISA), a non-profit coalition of organizations founded
by stillbirth parents, is dedicated to understanding the causes and
prevention of stillbirth.
|
|
Infants Remembered in Silence (IRIS) offers parents, families,
friends and professionals support, education and resources onthe death
of a child in early pregnancy (miscarriage, ectopic pregnancy, molar
pregnancy, etc), from premature birth, stillbirth, neo-natal death,
birth defects, sudden infant death syndrome (SIDS), illness, accidents,
and all other types of infant and early childhood death. Founded in
1987, IRIS offers an Advocate Program, Burial Clothing Sets (2" - 24" in
length), Common Burial Program, Support Groups, Bereavement Support
Packets, Holiday and Memorial Services, an extensive catalog, Speakers,
and Training options.
Just a Cloud Away offers
ideas to artfully preserve your love and the legacy of your precious
babies
Kanalen
is a website to
post PROM (premature rupture of membranes) experiences.
La Belle Dame
provides Healing Jewelry for Miscarriage, Infant Loss, Fertility,
Sympathy, Pregnancy and Birth Handmade Artisan sterling jewelry
specializing in jewelry for miscarriage, infant loss, fertility,
pregnancy, birth and baby.
March of Dimes
is an organization
whose
mission is to improve the health of babies by preventing birth defects,
premature birth, and infant mortality.
At Memory-Of,
create
a one-of-a-kind memorial website to celebrate the life of a beloved
family member, friend or other person who has passed away.
MISS
Foundation (Mothers in Sympathy and Support) is a
volunteer-based organization committed to providing crisis support and
long term aid to families after the death of a child from any cause.
MISS also participates in legislative and advocacy issues, community
engagement and volunteerism, and culturally competent,
multidisciplinary, education opportunities.
Click here to watch the MISS Foundation Public
Service Announcement!
,Miscarriage Memoriesto grieve the
loss and honor the life.
Missing GRACE Foundation's
mission is to provide resources
and support for families that have experienced: pregnancy loss, infant
loss, infertility or adoption and to advocate for comprehensive, patient
focused prenatal care for all women.
Five core areas encompass the
heart of the mission: Grieve, Restore, Arise, Commemorate
and Educate. The foundation is dedicated to raising awareness of
stillbirth prevention methods, ways to reduce risk of all types of
pregnancy and infant death and the need for compassionate grief support
services through providing educational materials and forums for both the
general public and health care professionals.
My Forever Child
offers unique keepsakes, jewelry and gifts to comfort those touched by
the loss of a child, no matter what age-miscarriage, stillbirth,
pregnancy loss, newborn baby, infant, older child and adult loss.
The
National MPS Society
exists to find cures for MPS and
related diseases. We provide hope and support for affected individuals
and their families through research, advocacy, and awareness of these
devastating diseases.
The mission of
National Share Pregnancy and Infant Loss Support, Inc. is
to serve those whose lives are touched by the tragic death of a baby
through early pregnancy loss, stillbirth, or in the first few months of
life.
The
National Council of
Jewish Women, New York Section, Perinatal Loss and Support
Program (PLSP) offers nationwide telephone counseling and support groups
in the New York metropolitan area to those who have experienced
miscarriage, stillbirth or newborn death as well as to those who are
pregnant after a loss.
The mission of
the parent-led
National Stillbirth Society is to
"educate, agitate and legislate" for greater stillbirth awareness
,research and reform.
Obituaries Help provides message samples for expressing words of condolences to someone after the loss of a loved one. Use these condolence examples to help you write your condolences in cards or letters of condolences.
Paige's
Page is a personal website honoring a daughter gone too soon, with
information on Trisomy-18 and additional resources.
Project Flutter is a goodwill effort organized to bring together and provide support for families who have lost a child. No matter what your story might be, Project Flutter is here to help. Postpartum Support
International’s website is intended only to
increase knowledge on postpartum issues.
The
Pregnancy Loss and Infant Death
Alliance (PLIDA), is a nationwide, collective community of
parents and health care professionals. We work together to ensure that
all families experiencing the death of a baby during pregnancy, birth,
or infancy will receive comprehensive and compassionate care from
diagnosis through the reproductive years.
Remembered Forever is a place for those of us who have lost loved ones to cherish and
celebrate their lives.
Remembering Our Babies
works with local, state and national leaders to obtain a National Day of
Remembrance recognizing the need for community education and awareness
when a family loses a child to miscarriage, stillbirth, and/or neonatal
death.
Remembering Your Baby provides keepsake boxes to families who lose babies at or before birth.
Sidelines
National Support Network is a non-profit organization providing support,
education, advocacy and resources to women and their families during a
high risk or complicated pregnancy or premature birth.
Skye Foundation
raises awareness of the adverse
outcomes of bleeding disorders related to pregnancy. The Skye
Foundation to be a place where those who have experienced miscarriage,
stillbirth or infant death, can receive comfort, knowing that they are
not alone and realize the hope of restoration.
SPALS
is an active support network, with about 400 members sharing mutual
support and information regarding subsequent pregnancy.
The
Tender Loving Care Foundation's
mission is to bring about a brighter, stress-free beginning for all
families whose children may one day be in need of neonatal health care
services.
Thumbies
designers
of fingerprint keepsake jewelry.
Valley of Life is a site for remembering and memorializing loved ones that have passed on.
Wintergreen Press The
Web Site of Sherokee Ilse,
Bereaved Parent, International Speaker and Author of Empty Arms
and many other books. She shares wisdom, practical tips, upcoming
events and links to many other resources for families who have had a
baby die and the professionals who care for them. |
|
Books
|
|
A Silent Love: Personal Stories of Coming to Terms with Miscarriage
by Adrienne Ryan.
A Silent Sorrow: Pregnancy Loss; Guidance and Support for You and Your
Family by
Ingrid Kohn, Perry-Lynn Moffitt, Isabelle A. Wilkins.
A Woman Doctor's Guide to Miscarriage: Essential Facts and Up-To-The
Minute Information on Coping With Pregnancy Loss and Trying Again
by Lynn Friedman, Irene Daria, Laurie Abkemeier (Editor).
About What Was Lost by Jessica Berger Gross.
An Empty Cradle, a Full Heart: Reflections for Mothers and Fathers After
Miscarriage, Stillbirth, or Infant Death
by Christine O'Keeffe Lafser, Phyllis Tickle.
Another
Baby? Maybe...by Sherokee Ilse and Maribeth Wilder Doerr.
Coming to Term: A Father's Story of Birth, Loss, and Survival
by William H.,
Jr. Woodwell.
Days in Waiting: A Guide to Surviving Pregnancy Bedrest
by Mary Ann McCann.
Empty Arms: Coping After Miscarriage, Stillbirth and Infant Death
by Sherokee Ilse.
Empty Cradle, Broken Heart: Surviving the Death of Your Baby
by Deborah L. Davis, PhD.
Ethan’s Butterflies by Christina Jonas-Simpson
Forever Our Angels by Hannah Stone.
Grief Unseen: Healing Pregnancy Loss Through the Arts by Laura
Seftel.
Help, Comfort and Hope After Losing Your Baby in Pregnancy or the First
Year by Hannah Lothrop.
Holding On To Faith
by Audrey Carney
I Never Held You by Ellen M.
Dubois.
Life Touches Life:
A Mother's Story of Stillbirth and Healing
by
Lorraine Ash.
|
|
Miscarriage: A Man's Book
by Rick Wheat.
Miscarriage: A Shattered Dream by Sherokee Ilse and Linda
Hammer, PhD.
Miscarriage: Women Sharing from the Heart by Marie Allen, Ph.D.
& Shelly Marks, MS.
Mommy, Please Don’t Cry: There Are No Tears in Heaven
by Linda DeYmaz.
Our Stories of Miscarriage: Healing With Words
by Rachel Faldet and Karen Fitton.
Parenthood Lost: Healing the Pain after Miscarriage, Stillbirth, and
Infant Death by Michael
Berman, MD.
Pregnancy After Loss: A Guide to Pregnancy After a Miscarriage,
Stillbirth or Infant Death by Carol Cirulli Lanham.
Still to be Born: A Guide for Bereaved Parents Who are Making Decisions
About Their Future by Pat Schwiebert, RN and Paul Kirk, MD.
Taking Charge of Your Fertility by Toni Weschler.
The Anguish of Loss by by Julie Fritsch and Sherokee Isle.
The Shadow of an Angel - Diary of a Subsequent Pregnancy Following a
Neonatal Loss by Marion Cohen.
Trying Again: A Guide to Pregnancy After Miscarriage, Stillbirth, and
Infant Loss by Ann Douglas, John R. Sussman M.D.
Unspeakable Losses: Healing from Miscarriage, Abortion and Other
Pregnancy Loss by Kim
Kluger-Bell.
When Hello Means Goodbye: A Guide for Parents Whose Child Dies Before
Birth, at Birth, or Shortly After Birth
by Pat Schwiebert, RN and Paul
Kirk, MD.
When Pregnancy Fails: Coping with Miscarriage, Stillbirth and Infant
Death by Susan Borg and Judith Lasker.
|
Getting
Off "Baby" Ad Lists
If you are getting "baby" junk mail and wish to
get off the list write to:
Mailing Preference Service, P.O. Box 9008 Farmingdale, NY 11735.
For telephone solicitation removal:
Mailing Preference Service Phone Preference, P.O. Box 9014, Farmingdale, NY
11735.
This won’t stop every call or mailing, but will catch the bulk and may take
several weeks to take effect.
|
